Breaking through barriers for workers
who have children with special needs

Our Advisors

Spina Bifida and Hydrocephalus Association of Quebec

quebecsp• Support and encourage research to determine the causes of spina-bifida; work towards improving treatment and prevention techniques.

• Disseminate information about spina-bifida and hydrocephalus in its publication Le Spinnaker; sponsor information and training sessions; ensure production of material, promotion and

awareness-building tours throughout Québec.
• See to the development of services that meet the needs of persons with spina-bifida and their families.
• Provide counselling and referral services.
• Educate the public about spina-bifida and how to prevent it.
• Provide leadership and cohesiveness among regional associations to share ideas and experiences, throughout Québec.
• Develop and oversee media communications, so as to harmonize its message with existing policy.
• Lobby government and other decision-making bodies on issues regarding community living, especially for those with spina-bifida.
• Provide support to regional associations by sharing its expertise as well as providing planning, organizational and promotional tools, etc.

Resource Details:
Topic Area: Family support and information
Type: Website
Source/Organization: Not-for-profit organization
Geographic Focus: Québec
Language: Bilingual (French and English)
Purpose: Improve the quality of life for its members and of those who lives are affected by spina-bifida
Date reviewed: January 2013